Denise Neish - Choosing a Joyful Life with Cancer

Next PET scan scheduled

Next PET scan scheduled

Written Oct 7, 2013 4:39pm

Things have continued to be great for me, other than that I can’t run right now due to my legs healing from stress fractures.  My next PET scan was scheduled today.  I will go in on November 4th and my scan will be read within a few days.  I will post my results when I get them. I feel optimistic that I will continue to enjoy good health.  I am about a year and a half in remission now, and the first five years are really critical.  If I can make it 5 years in remission, it is much more likely that the cancer will not return.

Stress fractures

Stress fractures!

Written Sep 20, 2013 12:00am

I have been feeling great the past few months.  I ran two half marathons and a 5K this summer, and am signed up to run another half marathon in October.  It has been so fun to get a little more into my running.  BUT, about 6 weeks ago I started noticing some pain in my right leg.  (In my tibia).  I would just take an extra day or two between runs, and then try again.  I started taking a lot of Ibuprofen, thinking that would do the trick, but no luck, I was noticeably hobbling. I continued to run when I could, but it got harder and harder to get started because my upper legs (femurs) were also hurting.I take a drug called Zometa every four weeks, and have done this for the past 2 years.  It is a bone strengthening drug that helps to prevent recurrence of cancer in the bones.  The irony is that when bones are too dense, they are more susceptible to fractures.  I often have aches and pains from this medicine, so I didn’t know if my pain was just from that.Finally, two weeks ago, I admitted to myself that I had a real problem.  I knew I must have a stress fracture when I ran my finger along my tibia and felt a very specific painful spot.  I stopped trying to run, but was still hobbling after a week off, so I knew I needed to get it checked out.

I had a bone scan two nights ago and discovered that I have THREE stress fractures!  One in each femur, and the one in my right tibia.  I cannot be on crutches because both legs have fractures.  Really, all I need is time off from running.  But now I also need to figure out if I should continue taking Zometa or not.  Seems like it is doing more harm than good.  I don’t want to be broken all over!!  I know these stress fractures will heal over the next several weeks, but I am still sad that I can’t run for a while.  I will meet with my oncologist next week to discuss Zometa.  Not sure if I should completely stop taking it, or if I just need to scale it way back.  It may be a really positive thing to just get off that drug because there are several side effects to it.

In the meantime I will be doing some really lame workouts like biking! ;)

Great News!

Great News!

Written Jun 11, 2013 1:05am

So after my last PET scan, I was left feeling worried about that lymph node in my neck that was questionable.  I talked to the doctor about it and we decided to have it removed and tested rather than wait and repeat a PET scan soon, which really probably wouldn’t answer our question anyway.  We needed to really know if it was cancer or not, and so we decided on a little surgery.
Last Tuesday I went under general anesthesia and had 8 lymph nodes removed from the left side of my neck.  (I guess they took more out to make sure they got the correct one.)  We waited a couple of days for the pathology, and received the call on Thursday.
I was so relieved to hear that there was no cancer in those lymph nodes.  I really had been trying to put it out of my mind, but I’m so glad we got a definitive answer and now I won’t have to wonder if that lymph node was malignant or not.
I am sooooo sooooo grateful that I can just continue to be healthy and not in treatment, or worrying about cancer.  One more scar, but now I have peace of mind!!
Looking forward to running the AF Canyon Half Marathon this Saturday!

May 2013 PET scan results

May 2013 PET scan results

Written May 17, 2013 3:38pm

I had my 6-month PET scan last Friday and this morning got the results.  Overall it looks great, but it is not quite as definitive as I was hoping.  Basically there is a lymph node on my left side of my neck under my jaw that is a bit “iffy”.  It has a slightly higher metabolic rate, but it is probably just “reactionary” which means that it is because of a slight infection in my body.  The oncologist thinks it is probably nothing, but wants me to do another PET scan in 3 months just to follow up on it.
I think it is probably fine too.  I feel great, and am getting ready for a half marathon in a few weeks.  Honestly, I have just learned to live with a bit of uncertainty, basically thinking that we probably got rid of all the cancer, but never really knowing for sure.  So this is not something that is any different than that!!
I am happy about everything else in my body looking great, and am not too worried about that lymph node.  I’ll assume it is okay unless I find out otherwise in August.  And if that is the case then we will cut it the heck out of me and be done with it!!!  ;)
Love you guys!  Thanks for the prayers!

Two years ago today

Two years ago today

Written Apr 28, 2013 12:52am

Two years ago today was the hardest day of my life.  Two years ago today I was scared all day.  My world had already been rocked when I found out I had breast cancer, but I had already had the initial surgery, and was adjusting to the idea of beginning chemo.  I was really worried about the effect on my family, but I knew I would be okay in the end.

Then, when the lab results came back and I was told the cancer had spread to 24 lymph nodes, my confidence started sinking.  The nervous patter in my heart and flutter in my stomach that I had felt for the last couple of weeks increased.  My appetite was gone, and worry gnawed at me, but I tried to appear brave on the outside.

After discovering the 24 malignant lymph nodes, a PET/CT scan was ordered.  I waited 5 long days for the doctor to call with the results.  I was told he would call me that evening on his way home from work.  A foreboding feeling had been building for days, and I was mostly numb by the time he called.

I won’t relive it.  The friend who “knew” that she needed to come by right before the doctor called, . . . taking the call alone while standing in my driveway, . . . and physically shaking as the doctor began stalling around and asking if my husband was with me.

He did not allow me to have any hope at all.  When he told me I was “incurable”, he refused to acknowledge that in some rare instances people defy the odds.  He offered me the option to not even go through chemo, . . . not to fight it at all!  I will not give more details of this conversation, but I was told in no uncertain terms that we could not get rid of all the cancer because it had spread too much.

Two years later, I have been in full remission for a year.  I ran 10 miles this morning, helped some family members move, played with my kids, weeded in the front yard, and am going on a date with my husband tonight;  dinner and the temple.  I have had two perfectly clean PET scans, 6 months apart, and am hoping for another in a couple of weeks.

I have learned some things over the past two years.  One is that life is short; . . . for all of us.  Whether we live 38 years, or 88, it will feel too short.

Second, because it goes by so quickly, there are some things that matter, and some things that don’t.  People matter, but stuff doesn’t.  And some people matter more than others.  Family is the most important.  Teaching your children everything you know becomes vital, and somehow, what you teach them becomes something that you think about all the time.  ‘What are the most important things I can be teaching my kids, and what fun memories can we make?’ is a thought you have several times a day.  Wasting time on trivial stuff becomes something you want to avoid.  You want to make all your time matter.

Third, having courage is vital to just living happily in this world.  We have less control over our lives than we sometimes think, and there are plenty of things to be scared of, but courage is truly the power to live a happy life.

Finally, I know without a doubt that God lives and looks out for us.  I have felt real comfort, love, and peace flood my mind while I have poured my heart out to Him in prayer several times.  I have had friends, a family member, and even a nurse come to my rescue when I desperately needed help right then.  There is no question in my mind that I was the recipient of some divine help.  Those who miraculously came to my aid have told me that they felt inspired to call or come right at those times.

I cannot ever deny God’s hand in my life.  He has also helped me gain some personal maturity and acceptance.  I know I can trust Him completely because He wants long-term happiness for me and for my loved ones.  I know God lives and loves me, and loves every one of His children.  Come up with any explanation you want, believe what you want, but He really is real.

I don’t want to deal with cancer again, and I hope I won’t, but I am grateful for what I have learned from it, and I am looking forward to much happiness in the years ahead.

Video for the AF Half Marathon

Video for the AF Half Marathon

Written Jan 15, 2013 10:01pm

Denise’s Story

This is a little video clip that was made for the AF Half Marathon.  This is the half marathon I did last summer.  I like having a little video for me and my family as a memory of this event and what it meant to me at the time.
It is obviously a very brief little summary of my cancer story, and mostly focused on the race they are advertising, but that race really did mean a lot to me, so I was happy to be a part of their advertising for it.
I’m still feeling great and am training for this race again for 2013.  Just thought I’d post this to my caringbridge link for anyone who wants to view it.

PET scan results Nov. ’12

PET scan results Nov. ’12

Written Nov 7, 2012 4:02pm

Last Friday I had my 6-month PET scan.  Branden went with me, and I drank the nasty stuff sitting in a dark room for 90 minutes, and then lied still in the PET/CT machine for another 30 with my right arm numb the whole time!!  =)
I didn’t ask to see the test after because I felt good about it, but didn’t want to risk seeing something questionable in the study and worrying about it all week until getting the results.  I am scheduled to go in tomorrow morning to get the official PET scan results, but the doctor was able to look through it today and had his nurse give me a call so that I would not be worrying until tomorrow morning.
Everything looks great!!  There is still evidence in my bones of where the cancer was, and some effect from the radiation, but it does not look like there is any cancer there.  I am so happy, grateful, and relieved!!!
Thank you so much for those who prayed for me.  I love you all!!!  I am bawling as I write this!  My heart is full of gratitude that God has seen fit to give me more time on this earth to be with those I love, and those who need me right now.
I will have another PET scan in May, but until then, I will live my life and not worry about my health anymore!!!!

New PET scan date

New PET scan date

Written Oct 31, 2012 5:49pm

My PET scan got moved up to this Friday, Nov. 2.  I still won’t get the results until either the 7th or 8th, but it will be nice to get the PET scan done before the weekend.  Branden will come with me, and my wonderful mother-in-law will be watching the kids so that he can be with me.
It is not painful or anything like that, it just is not something that I like or look forward to.  Glad that it will be over soon, and I look forward to good results so that I can put this out of my head for 6 more months!!  =)

Next PET scan scheduled

Next PET scan scheduled

Written Oct 24, 2012 11:05pm

I don’t know if anyone reads this blog anymore since it has been so long since I have updated it.  But just to keep it up to date, and in case anyone is checking up on me, I will give my update.
It has been so nice to enjoy life as a normal person the last few months.  It has been strange and a little surreal sometimes to make the adjustment to normal life after being treated for so long.
I am slowly getting my body stronger, and trying to eventually get off my heart medication.  I really can tell when I run/walk how I am doing, and it is a slow process, but I am getting stronger over time.  It may take longer than I had anticipated, but it’s coming!
The reason I am writing an update is because I have my next PET scan scheduled for November 5th.  The day before the election!  I will get my results on Nov. 7th or 8th and update this journal at that point. I think that everything will be fine.  I have been emotional a few times lately just thinking about it, but really, I do totally expect it to be a good result, . . . no cancer.
But if you are not too busy with all the buzz of the election at that time, feel free to send some prayers, thoughts, good vibes, (whatever you got), my way!!  I believe in the power of a lot of people praying for something.  It has worked before!  Thank you for anyone who is still checking in on me occasionally.  I am doing great, and will let you know my PET scan results as soon as I get them.

Remission!!

Remission!!

Written May 10, 2012 7:05pm

So, it’s official, my doctor (the radiation oncologist, who has been the most optimistic this whole time) has said that I am in a remission!  We went over the PET scan results today, and he said that my scan was combed over very carefully, and they cannot find any evidence of cancer anywhere.  He said that I could say that I am in a remission at this point.  It was great to get the official results today and to confirm that all this treatment has been effective for me.
He said that my case is very unique, and my other doctor has said that as well.  It is very surprising to them that I have no evidence of disease after what they saw on my PET scan last year at about this time.
We compared the two PET scans, (my first one and this last one) on a big monitor in his office.  I am just so glad that I don’t have to go back to last year and start over!!!
Even though I have been getting positive feedback from these scans and have felt that treatment has worked well for me, it is taking a while for it to sink in that I may be completely cured.  I think that is because I have been told so many times that that can’t happen for me.  Also, everything that I have looked up has usually confirmed that notion.  But now this doctor said that if I still have clean PET scans for the next four years that I will be considered “cured”.
Although I will still get a PET scan every year at that point for the rest of my life because I will still be at a greater risk of it returning with my history now.  My next scan will be in November.